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A zia Anna (6 ottobre 1931-18 gennaio 2008)

Thursday, January 24th, 2008

Tra le prime memorie della mia vita ricordo te che, mentre cucini, provi le tabelline a me, seduta a gambe incrociate sul tavolo della cucina di “casa vecchia.” Mi ricordo ancora quella cucina, in cui passavamo insieme delle ore, io a fare i compiti, tu a cucinare. Era la tua passione la cucina, una passione che avevi eriditato dalla tua mamma, la ormai famosa nonna Nina. Anche se avevi passato tutta la mattina a cucinare qualcosa, se noi sorelline ci lamentavamo dicendo che non ci piaceva, tu ti rimettevi immediatamente ai fornelli e ci facevi qualcosa di nostro gusto. Io che ero tanto schizzinosa col cibo mi rifiutavo di mangiare se non mi imboccavi tu, seduta sulle tue ginocchia. Ci viziavi in questo modo, zia, ci viziavi di amore. L’hai continuato a fare poi con i nostri bambini, che ancora adesso vogliono il pollo d’oro della zia Anna o la sua minestrina rossa e spesso non si accontentano di quello che gli facciamo noi.

Avevi un talento speciale con i bambini. Quanti ne hai aiutato ad allevare? Ricordo alla Domus le parole di Mario, che è stato uno di quei bambini, come noi: “Se li avessi partoriti tutti tu, non avresti potuto averne così tanti intorno” (e scusa Mario che in dialetto non la so ripetere questa frase che le è piaciuta tanto). Tutti rimanevano incantati dalla tua pazienza con loro. Noi mamme a volte sospiravamo che non volevamo giocare all’ennesima partita a Uno, ma tu non ti tiravi mai indietro. Dicevi sempre di sì ai loro giochi e li lasciavi vincere sempre. Anche i nostri bambini hai viziato di amore.

Non ti sei mai sposata e ti sei dedicata tutta intera a tutti quei bambini che non avrebbero potuto essere più tuoi che se li avessi partoriti. Ricordo due vestitini a stampa scozzese che avevi cucito per noi, uno a sfondo rosso per Mariangela, uno a sfondo blu per me. Ci piacevano da impazzire quei vestitini. E tu ne eri immensamente orgogliosa. Come eri orgogliosa di noi. Quanti ne hai cuciti, rammendati, ricuciti di vestitini, calze, mutande? Quanti culetti hai pulito? Quanti pannolini hai stirato (quando ancora i pannolini si lavavano e stiravano)? Quante lacrime hai asciugato? Quante partite hai perso a calcetto?

È difficile adesso sedere qui, lontana migliaia di chilometri davanti a un freddo computer, inadequato surrogato di un volto amato, a scrivere di te, cercando di ritrovare in una memoria sfuggente i ricordi di te. È difficile perchè in fondo non sembra vero che il mondo possa adesso esistere senza di te. E paradossalmente era più facile ritrovare memorie quando ti visitavo in ospedale e mi raccontavi storie del passato. Perchè tu certamente non dimenticavi niente: avevi una memoria di ferro, come si suol dire. In te era racchiusa la memoria di generazioni, la saggezza antica, i nomi, i volti, i gesti di chi ci ha preceduto. Vorrei averti registrato quando raccontavi le storie dei nonni: storie che poi hai raccontato ai nostri bambini e che noi non sapremo mai ripetere fedelmente o con lo stesso fervore.

Ho sempre disdegnato chi, a un funerale, parla solo bene del morto, senza menzionare i suoi difetti. Ho sempre detto che, quando verrà il mio momento, vorrei che le persone che amo rammentassero i miei difetti e poi dicessero che mi hanno amata lo stesso e forse anche di più, per quei difetti. Adesso però capisco che quando si perde una persona amata, sono solo le cose belle che ci vengono in mente. È un grande sforzo ricordarsi dei momenti brutti, delle litigate, dei pensieri cattivi. E poi perchè? Perchè davanti alla morte non pensare invece alle cose belle: il profumo degli arrosti della domenica, i centrini ricamati a uncinetto, i vestitini cuciti a mano?

E allora continuo a ricordarti per l’amore che ci hai dato: immenso e senza condizioni. Perchè alla fine, solo quello conta. Alla fine, solo quello vive in noi e, attraverso quello, te.

Grazie zia. Ti vogliamo bene. Tua figlia, Catia

Thank you supporters! Report from the Breast Cancer 3-Day

Tuesday, November 13th, 2007

On November 9-11, 2007 the nine members of Team Sabita participated at the San Diego Breast Cancer 3-Day. We walked 60 miles in 3 days in support of the fight against breast cancer.

The 2007 San Diego 3-Day began with emotional opening ceremonies at the Del Mar Fairgrounds, during which we were called to say out loud the names of our heroes, the ones we were walking for and with. As we started walking, we soon realized that we would encounter many supporters along the way. Many of them called themselves “walker stalkers” because they literally stalked us throughout the 3 days, following us along the route with their bikes, motorbikes, cars, feet (!). Some of them are regulars of the San Diego event, like “Smile Guy and Little Grin,” a father-daughter duo dressed up in Smiley-pajama pants, cheering the walkers with a megaphone at the “du-du-du-du-du-du…CHARGE!” tune, and distributing stickers. In our walk along the beachfront there was a ton of community support, including two spunky girls dancing on top of their car and two Texas CowBelles with their cow-buggie and cow-jokes following us around. The San Jose Police was also among the regulars: these guys have been driving down from San Jose for many years, carrying their bikes down to San Diego in a big truck and then making sure we were safe and happy along the route. Several humorously-decorated vans (from the “peace mobile” to the more audacious “pimp mobile”) kept driving by our side, ready to pick up exhausted or injured walkers. Wit abounded, indeed, as well as blisters, but we were also reminded of the deadliness of this disease when we saw two daddies and their two little girls distributing candy to the walkers, beside a sign that said “I miss you mom.”

The slogan of the 3-Day is “because everyone deserves a lifetime” and we were constantly aware of the tragedy of breast cancer, as well as other types of cancer. One woman we met along the route was walking with the picture of her brother, who was diagnosed with esophageal cancer and was undergoing chemotherapy, and her dad, who on his son’s birthday had shaven his head in solidarity. Then there was a group of women humorously dressed up as prom queens: they belonged to the Young Survivors’ Coalition, an organization of women who were less than 40 years old at diagnosis. Many of the teams also sported t-shirts with pictures of their loved ones, women and men of all ages, who died of cancer.

After many long walking hours, a few enjoyable and panoramic rest stops, we arrived at the camp and set up our tent, among the sea of pink tents. A peace flag and Sabita’s photograph made our tent markers. We hungrily devoured our hot dinner under huge canopies, took a hot shower in big trucks, and visited the rest of the camp: the 3-Day store, the post-office, the tv-space, the stretching area, the foot massage tent, or the medical tent. When a speaker announced the arrival of the last walker to the camp, a 3-Day flag was raised to show that all had finally come home for the night.

Day 2 saw us waking up, having breakfast and starting our walk way before the crack of dawn. While still yawning, we kept our eyes open to spot the nearest coffee shop along the way, and enjoy our daily hot latte. After-hours didn’t lack entertainment and some of us even danced to 80s music, after having walked another 21 miles that day. On night 2 we also offered a standing ovation to welcome 17 researchers from North Africa and the Middle East, who had come to witness the 3-Day and walk with us for some of the time. As darkness fell over the camp, we caught a view of a big white tent, circled by smaller white tents on top of a hill overlooking the ocean. It was the ‘remembrance tent’, set up in memoriam of 3-Day walkers who could no longer walk with us. The smaller tents represented all the cities in which the 3-Day is held, covered with names and dedications by walkers in each city. Inside the big tent, a smaller tent for San Diego was set up and people came in to write the names of their loved ones. Along the sides, pictures of women who had walked or signed up to walk in San Diego but died before being able to, reminded us of the fragility and uncertainty of this life. Notebooks on a table hosted the reflections of those who needed a page to express their sorrow and tell their memories.

Along the way, our team was greeted by our personal supporters, who came down from Long Beach and other cities to cheer us. We were glad to stop and get warm hugs and group pictures with Ann Thomas, Sue Metzmaker, Geri Winters, Donna Corpolongo, Chris Williams, Sly Mallory, Kelly Luther, Neil, Cecilia and Patrick Navin, Mark, Jordan, Cassidy and Felix Powers, Phil, Alana, Julie, Bella, and Cooper Giesen, and Alessandro Hardy. Cecelia Lynch and Tom, Brigid and Aidan Warnke provided a surrogate loving family for Alessandro while Bruce and Catia were off to the walk.

At the closing ceremonies on day 3 at Petco Park survivors were given pink t-shirts, while fellow walkers and supporters donned white t-shirts. The stark contrast between people in white and people in pink made us all even more aware of the impact of cancer in our lives. As we prepared to enter the park, the two survivors in Team Sabita bonded with fellow survivors as we listened to each other’s stories. As we walked toward the park we saw hundreds of people lined up to greet us, tears in their eyes, stunned by the number of pink t-shirts they were seeing. Finally, our fellow walkers symbolically took their shoes off and raised them to salute us as we entered the park. It was our turn to be moved to emotional tears.

Our team parted from each other somewhat reluctantly, but as we said good-bye we knew we were ready to repeat the feat: Team Sabita will walk again, and we invite everyone whose life has been affected by breast cancer, everyone who loves someone who has breast cancer, everyone who simply wants to contribute to a worthy cause, to join us as we walk 60 miles in 3 days, next year, in San Diego.

We wish to thank you, our friends and families, for your support: for coming to cheer us, for donating to our team, for buying our tomatoes, for taking care of our children, for training with us, for listening to us, for praying with and for us. We feel blessed and thankful.

Collectively, the members of Team Sabita raised over US$ 27,000 to benefit Susan G. Komen for the Cure and the National Philanthropic Trust Breast Cancer Fund. The San Diego 3-Day and its 4,600 participants raised a total of US$ 12.3 million for the cause. Komen for the Cure is the largest US organization devoted to research, education and advocacy against breast cancer, second only to the US government in funds spent in the fight against this disease. The National Philanthropic Trust Breast Cancer Fund provides support for breast cancer initiatives including research, treatment, prevention and education. The NPT Breast Cancer Fund is an endowment, which will ensure that the cause receives long-term, continuing support irrespective of gifting activities in years to come. Both organizations sponsor programs at the national and international level. Moreover, some of the money raised at the San Diego 3-Day will be used locally to help many women avoid being faced with “the choice between chemotherapy and rent.”

For pictures, visit http://picasaweb.google.com/teamsabita

No Title

Wednesday, November 7th, 2007

Check out our 3-Day pictures day-to-day on this site:

Guardate le foto della Tre Giorni su questo sito:

Le caricheremo ogni giorno dal cellulare di Jon.

Breast Cancer 3-Day

Wednesday, October 31st, 2007

OK, I’ll dust the cobwebs on this blog and post something today….here’s the email I sent to my friends and supporters (aka you) today!

Dear friends and supporters:

 

The 3-Day is fast approaching: at 6am on November 9th, my team and I will take the first of many steps toward the 60 miles-in-three-days goal we set up to walk several months ago. It’s been a long journey, though for some reason I see and remember this past year in a blurry haze. It’s been over a year since my diagnosis. I am alive; missing some body parts, but alive. Some of us were not so lucky. Some of us will not live another year. Many of us will live long and quality-filled lives, thanks to the work and perseverance of those of us who were diagnosed and treated in those early days, when breast cancer did not receive the attention and research it does today in the western world. Some of those pioneers died, but they initiated a movement that has been an example for advocates of people suffering from many other diseases. Thanks to those early pioneers we (I) have a chance to life.

 

But the struggle is not over: breast cancer still cannot be cured. Most importantly, access to known and proven treatments, information, and support systems is denied or unavailable to many people in the world. There is still a lot of work to do. So while I am glad and grateful I am alive and I have a wonderful network of support, I cannot help but ache for those sisters and brothers who are not; for those whose life chances are diminished because of lack of access and/or because of where they live; for those alone; for those sick of even less treatable (and less funded) diseases…I cannot help but be afraid for what this disease will bring me and other people like me.

 

On November 9th-11th, I will walk to celebrate life; to rejoice in being alive and seeing my son’s beautiful face every morning; in having survived mastectomy, chemotherapy and radiation for now. But the members of Team Sabita and I will also walk in mourning for and honor of those who died fighting and in support of those who are still struggling with this or other diseases. All over the world. Our t-shirts are engraved with our team name and the slogan “for the world” in 14 languages representing all 6 inhabited continents (though we couldn’t find translations for Native American or Aboriginal languages). We will also bring with us the names of our supporters and their loved ones. You will walk with us.

 

For those of you who can join us at some point in our 60-miles trek, the 3-Day organizers have created a “Supporters’ Handbook”, which can be found and downloaded at the following website: http://tinyurl.com/yp2d6q

 

Please do consider coming to San Diego and physically join us in our celebrations: there will be several opportunities to root for us along the way at several ‘cheering stations’ and you can also participate to the closing ceremonies at Petco Park. If you can’t join us but want to see what the 3-Day looks like, the organizers have set up a webcam, which will be available for viewing between the hours of 2:00 pm and 9:00 pm on Friday and Saturday during the event. All instructions and the link to the webcam are in the handbook.

 

I hug you all.

 

In peace,

Catia

 

P.S.: I encourage you to forward this message to people you know and/or I might have forgotten (and I apologize in advance for this).

 

P.P.S.: Remember it is not too late to donate to our team: to do so, please visit http://tinyurl.com/3yvck6

 

Crazy Sexy CanSer!

Friday, August 17th, 2007

http://www.crazysexycancer.com

Harriet’s Last Knitting Project

Wednesday, June 27th, 2007

The last knitting project that our
Harriet did was an unraveling of her days on this earth.

She took those days and reassembled them: now they were a clipper ship
that would take her to the stars

To be one with the moon and stars to be as a part of the molecules on
a Solstice night.

She was still Harriet, but much larger: filling up the world’s nooks
and crannies where she played Hide and Seek with the living.

We looked for her. “Where is Harriet?” “I’m here,” she said softly.
“I’m knitting something new. And look how beautiful it is….”

copyright 2005 Marcy Manning

L’orto di Bruce

Tuesday, June 26th, 2007

Il pollice verde di mio marito si mostra al suo meglio in questa foto del suo (nostro) orto…verdure biologiche che nutrono i nostri corpi e i nostri spiriti… e poi: la mia parrucca rossa in aprile con il mio bambino….la nostra pedalata nella contea di Santa Barbara in maggio con la peluria bionda che appena spunta.

GardenRed Wig and SandroSanta Barbara May 07

Back from camping trip

Wednesday, May 16th, 2007

I’m back from the camping trip the three of us took to celebrate the end of chemo. We arrived in the Santa Ynez river valley when it was almost dark, but we still got 1/2 hour of light – enough to at least set up the humongous tent we bought…The tent sleeps eight, but boy was it nice to have that much space so that I could actually find my clothes (our previous tent was for 2 people only)! Then we headed off to find food. By that time it was already past nine and, we looked and looked, went up to Solvang, supposedly a touristy area, to find absolutely *no* restaurant open! By 10 we were desperate and starving, our 8-year old Sandro patiently trying real hard not to fall asleep. Finally we found a Domino’s open and we sat in their waiting area gulping down bad pizza with gusto. That night my “boys” slept peacefully, while I struggled to get unhooked from Ativan (the anti-anxiety med my onco put me on while on chemo – ok, bad timing on my part!) and didn’t get much sleep. Plus I started having this tingling/pain sensation in my right arm (chemo arm – gotta check with my onco). But the following day we headed off to Solvang and took a fabulous bike trip from there to Los Olivos, through Central California’s Santa Barbara County’s vineyard-filled hills. Stunningly beautiful. We stopped at a cafe in Los Olivos to eat delicious panini, walked around a little, me and Bruce dreaming about tasting some of the wine, but no kids allowed – sorry! Then biked back, all downhill, realizing only then that the previous 5 1/2 miles had been uphill and that Sandro had done it without gears! He’s a brave little boy indeed!!! Back at camp we had a nice dinner together, then played games by the fire. At night, I still didn’t sleep. On Sunday we woke up at 5:30 to drive Bruce to Santa Ynez where he participated in the first Santa Barbara County 1/2 marathon – parts of the proceeds went to the Breast Cancer Fund, which is devoted to identify and advocate for the elimination of the environmental causes of breast cancer. My boys surprised me with a Mother’s Day card and gift early in the morning. While Bruce was running, Sandro and I had a nice breakfast of waffles and crepes with fresh strawberries – yummie, then proudly watched papa’ cross the finish line in 88th place (15th in his division). On our way back to LA we even had time to stop and play some minigolf in Ventura, and shop for Sandro’s shoes at outlet stores. I was glad Sunday night to be in my bed again, though, where I finally enjoyed a good night of sleep. It’s good to be home!

Reproduced With Permission from the Author

Thursday, May 10th, 2007

Useless people
July 17, 2000
Useless people!–who needs ’em?
You know the types.
They ignore your existence,
wait for you to contact them,
fail to respond in a timely fashion when you do,
act to others as though they care,
while snubbing you when no one’s around.
Or they send one card or one email
or call once
and then disappear.
Token people,
they have taken themselves to the periphery
of your life.
Perhaps you should send them a note:
“Since you have ignored my existence
during this critical period of my life,
you have taken yourself to the periphery of my existence.
I see no reason to retrieve you from that territory.”
But that makes YOU seem petty,
when in fact it is they that are unspeakably small
and unsatisfactory.
If they were students in a course,
you’d give them an “F.”
They’ve failed to show up,
failed to do all homework,
failed to learn anything,
refused even to ask how they could do better.
Fortunately, there are people in my life
who’ve made the grade,
who’ve cared enough to be there through thick and thin.
I’m grateful for them
and for people who’ve risen to the occasion when
I had no reason to expect they would.
But the toads and slackers who’ve been endlessly
lazy
uncaring
uninvolved
have managed to let me down
when I’m fighting a battle for my life.
Shame on them,
and shame on me if I don’t figure out
how to process this in a way
that leaves me calm and serene.
These people aren’t worth my rage.
They have qualified as barely human
in their detachment
and do not deserve any further involvement on my part.
Copyright 2000 Marcy Manning

Done Done Done – Finito finito finito

Friday, May 4th, 2007

Yesterday I got my final dose of chemo. Today I feel ok physically but have what my cancer friends call post-treatment depression. Fear. Panic at the future. Tired. Overwhelmed with amount of decisions and more treatments to go. Want to get out of thinking only about cancer.

Ho avuto la mia ultima dose di chemio ieri. Oggi mi sento fisicamente abbastanza bene, ma psicologicamente a terra. Le mie amiche che hanno il cancro la chiamano depressione post-trattamento. Paura. Panico per il futuro. Stanchezza. Sopraffatta dalla quantita’ di decisioni da prendere e di ulteriori trattamenti a cui sottopormi. Voglio smettere di dover pensare solo al cancro.